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What to do when waiting 2 yrs for autism diagnosis UK

What to do when waiting approximately 2 years for an autism diagnosis in the UK


By now you have convinced someone that you are a bit "not normal" when it comes to social engagements. That is you have marked deficiencies in:
  1. Social Imagination - you cannot tell what someone will do next.
  2. Social Interaction - 
  3. Social Communication - You are a little quite rude

The Kindness of Strangers

Well, now the phrase having to rely on the kindness of stranger seems very apt. From now on you will have to rely on the kindness of strangers, because if you a man with Aspergers you may only have you or a friend to get on with. If you think that someone with Aspergers should not be able to be humourous; ask Dan Akroyd <<Aspergian comedian.

So here is my list of amazing things to do whilst you are waiting for an autism assessment in the UK. I will write somewhere else how to go about getting an Autism assessment somewhere else.

Approaching child social services is still applicable if you have a child waiting for an autism assessment. Let me know if you want a list for a little one.

Autism in waiting todo list

  1. Google and join an autism forum online and or public group in your area. I'm a bit spikey so I have joined the Forum online forum.autism.org.uk. 
  2. Ask your doctor to register you for an ADHD test, the results can take approx 6 months. But the help you need may arrive sooner than that with an ASD report. There is a high probability that you will also have ADHD.
  3. Ask your doctor or self-refer yourself for counselling, it takes a while or forever. So best get started. There will be times when you may wish to talk to someone other than your doctor. Doctors have very little time.
  4. Ask adult social services to come and see you. This is tricky. They technically have to see you but legally this can also be forever. Yes, this is very weird. There is no legal time actual time limit for them to come and see you. even if you are priority one. My current wait is 8 months.
  5. Apply for the PIP. The personal independence payment pays you a little extra money if you are working or not.
  6. If you are working, apply for disability working tax credits.
  7. Lastly, I have two recommendations for books, which could help you figure some things out with your social interactions.
    1. Stephen Covey, 7 habits of effective families
    2. Dale Carnegie, How to win friends and influence people.


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